This is us... take us or leave us but we rock!

This is all of us. We are goofy and we love each other deeply. Luke has an amazing support system.

I think about all I know and all that I am continuing to learn. Each family has a choice to make when it comes to their child with a disability- either the disability with rule them or they will rule the disability. It is wrong to allow a persons disability to become the main focus of a family. The disability is definitely part of the equation, but so are the goals you have as a family. Don't let yourself become so obsessed with your child's disability that you can't look beyond it. These kiddos are amazing and they have such huge potentials. Dare them to reach their potential and provide support for them to get there. There may a few fits and they will make you think that they can't do what you are asking of them, but believe me, they will thank you in the end.

PICA

This is a picture of Luke "stemming" on the wall at his doctor's office. We have a name for the eating behaviors Luke has been engaging in for the past several months- PICA. His obsession with walls and eating paint has become overwhelming. We also found out that he has lost 2.5 pounds. It is really hard to deal with because I don't know what is causing it.

I try and try to provide all the nutrition he needs. He gets his meals, snacks, and extra stuff in each sippy cup, yet he is losing weight. I guess it is easy to feel hopeless about Luke. Everything with him is a struggle. I am so thankful for my mother. She is such a great support. Other than her, I feel like I am going through this alone. I worry and dream and have panic attacks.

It feels like my heart is breaking over and over.