3 day trip to Sacred Heart Hospital

It has been a long three days. Luke's EEG has turned out to be a 48 hour test. He has wires hanging from his head from a modified ponytail. He has been such a little trouper. He has been poked and prodded and still manages to enjoy himself. Luke has had a couple "staring" seizures, but has not had a major episode. The whole purpose of the EEG is to identify what Luke's seizures look like. I am frustrated. It's as if I am praying that Luke will have a seizure so that we will know what it looks like. The EEG will also help us see if he is epileptic. The doc came in this morning and asked us if we would want to stay for another 24 hours to increase the chances of seeing one of his major episodes. See, not only is Luke hooked up to a computer, he is also being recorded on a web cam. So, Luke has to stay in his little hospital crib.

I really want to go home. I am tired. Marty is tired. Luke has actually acquired a snotty nose and a barking cough since being here. I hate hospitals, but I want answers. What is the right thing to do? Should we go home and let Luke rest before having to come back Monday for an MRI? or should we stay to try to catch a seizure? I really don't know! I wish I could just take a walk with God and get an answer. If only it was that easy!

Frustration and an Update

We have not received any information about the genetic tests at Shands. It is frustrating. No one knows what is wrong, yet we all know something isn't right. He had blood taken at Nemours in Pensacola to test for allergies. The results have all come back negative. He is not allergic to several things- pet dander, pollen, etc.

So, Luke has a new neurologist now. I like him much better than the man he went to for the past year. The new doctor is thorough and kind. That is always appreciated. The doctor wants us to voluntarily admit Luke to Sacred Heart Hospital in Pensacola for three days of testing. He will have an MRI of his brain, blood work, urine work, and an over-24 hour EEG (brain wave observation). We plan to take Luke in on May 28th and stay until May 30th. While I am choosing not to worry, it is quite nerve racking. I am in prayer... constantly.

We have moved to a new rental. Luke loves to get on the floor and explore. He "army crawls" all over the house now. He is also putting small things into his mouth. We are finally having to baby proof the house. It's a good feeling :) I am proud of Luke. He is strong willed. That will prove to be a good thing in years to come.